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hi from manchster england

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Re: hi from manchster england

Post by sophie on Sun Jan 10, 2010 1:47 pm

How long have you been on the meds now?

Sophie xx

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Re: hi from manchster england

Post by curtisdon1 on Sun Jan 10, 2010 2:30 pm

Been on them about 3 months now

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Re: hi from manchster england

Post by sophie on Sun Jan 10, 2010 4:07 pm

That's good

Stay positive, don't be alarm if you start at some point to get some little fits back but do contact your GP you might just need to increase your meds. It might not happen that's just me talking about what happen to my daughter which has unusal benign partial and every body is different well each E is even if you have the same type that somebody it won't necessary affect you the same way.For your appointment next week i would recommend that you take with you a list of question if you have any and also your dairy where you kept note of everything if you do have one, if you haven't something to think about for the future i found this very helpful ( so i don't miss anything out).
Sophie xx

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Re: hi from manchster england

Post by curtisdon1 on Sun Jan 10, 2010 4:28 pm

Thanx for the advice sophie, I really hope they do increase the dose of my meds or even change them altogether, I don't know if it's anything to do with the meds but in the last month my short term memory has been extremely bad

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Re: hi from manchster england

Post by sophie on Sun Jan 10, 2010 4:49 pm

I've just look at orlep and just notice it's Valproic acid which that's want my daughter take hers is episenta she 3 and take 300mg of it a day plus 100mg of lamotrigine. In my opinion it does effect her short term memory among other thing. It might be too soon to change them but might increase them or add a other one.
Have you had any other side effects?
And did they do a blood test before they started the treatment and do you if they will do one has a check up? ( they didn't do one for Anais before she started it but read you should be monitor the first 6 months for kidney, liver) is it the same for orlep?
Sophie

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Re: hi from manchster england

Post by curtisdon1 on Sun Jan 10, 2010 6:10 pm

Yes they did do a blood test before I started them and will do one on friday, the only other side effects I had was I used to get terrible migranes for about the 1st 2 weeks I started the meds,

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Re: hi from manchster england

Post by sophie on Sun Jan 10, 2010 7:40 pm

Thanks for that i need to contact them tomorrow and find out for Anais what is happening. if i don't speak to you before your appointment good luck and let me know how it went.
Take care
Sophie xx

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Re: hi from manchster england

Post by curtisdon1 on Sun Jan 10, 2010 8:18 pm

Thanx alot sophie, hope everything works out for your daughter

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Re: hi from manchster england

Post by sophie on Mon Jan 18, 2010 5:07 pm

Hi Curtisdon1

hope you ok? how did your appointment went?

Sophie xx

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Re: hi from manchster england

Post by curtisdon1 on Mon Jan 18, 2010 6:14 pm

Hi Sophie
they took my blood and I'm waiting for the results now, the doc says he may need to put me on a higher doseage if the episodes keep happening, so I'm playing the waiting game now, just hope he calls me soon with results

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Re: hi from manchster england

Post by sophie on Wed Jan 20, 2010 9:27 pm

I'm sure it would be fine

xxx

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Re: hi from manchster england

Post by curtisdon1 on Wed Jan 20, 2010 10:16 pm

Iv got a bigger problem now as I work as a postman and due to my epilepsy I have not been able to perform my outdoor delivery duties for the Past 2 years as I have been haveing tests trying to find out what was wrong with me, now royal mail are saying if I am not fully fit by march they will medically retire me, I know I am covered by he dda but does any1 know were I can get any help as I'm very worried which isn't helping me 1 bit, thanx any1 who can help

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Re: hi from manchster england

Post by sophie on Sun Jan 24, 2010 8:23 pm

Sorry to hear that sorry i can't be of any help regarding your job first never been in that situation and second i'm not in the uk.
Have you try to ask your epi nurse they might know what to do or who to contact.
Take care
Sophie xx

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Re: hi from manchster england

Post by curtisdon1 on Sun Jan 24, 2010 9:14 pm

I'm in the proccess of seeing were u stand legally,
thanx sophie

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Re: hi from manchster england

Post by bigbull on Mon Feb 01, 2010 3:11 pm

hi and welcome to forums you can ask me any thing you want to

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