http://www.theepilepsysupportgroup.com/feed/? Latest topics Fri, 05 Mar 2010 23:08:30 GMT 10 http://i82.servimg.com/u/f82/14/42/03/73/curtri13.jpg http://www.theepilepsysupportgroup.com/feed/? http://www.theepilepsysupportgroup.com/your-experiences-f9/episenta-t163.htm Benjamin I'm about to go onto Episeta from Epilim, From what i gather there both pretty mutch the same drug just episenta being slower release, I find it hard to allways remember my tablets and take them this is due to allways having a short term memory because of epilepsy, Im hoping that only taking episeta once at night for 24hours will help me control my episodes, im hoping for the first time in my life i can be sezure free, My question is, Is anybody on this forum taking episeta or know of ... Your Experiences Thu, 25 Feb 2010 19:54:01 GMT http://www.theepilepsysupportgroup.com/your-experiences-f9/episenta-t163.htm#488 http://www.theepilepsysupportgroup.com/your-experiences-f9/episenta-t163.htm http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/learning-delays-t164.htm gossipqueen hi im mum to a 6 yr old who has from 9 mths suffered absences , however she had a tonic clonic in oct .. she has been on eplilim since she was about 3 . She is now in yr 1 at school and really struggling she cant read or write only knowing a few letters and not remembering numbers .. she has only 5 mins concentration span and is now doing diferent work from the rest of her class . She has some 1 2 1 but they are now going down the statementing route to hopefully get her more .. Has anyone else ... Parent Discussion Lounge Fri, 05 Mar 2010 23:08:30 GMT http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/learning-delays-t164.htm#495 http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/learning-delays-t164.htm http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/support-for-parent-of-a-child-with-epilepsy-t161.htm rosannamelder Hi I am brand new to this and I am looking for support from other parents who hv a child with epilepsy, to share and tallk with me about how to cope with this medical condition. My son who is 13 now had seizures from day 3 of his birth. As he grows older, it seems to be taking its toll on me and I wonder if I am doing all the right things to help him thru it all. His seizures are pretty much under control but its all the other stuff that I sometimes find hard to cope with, not sure how to deal ... Parent Discussion Lounge Tue, 23 Feb 2010 10:46:38 GMT http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/support-for-parent-of-a-child-with-epilepsy-t161.htm#481 http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/support-for-parent-of-a-child-with-epilepsy-t161.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hey-everyone-t162.htm Benjamin Hi guys, Some may know me from other epilepsy forums, Im glad this forum has started, don't see many fourm's like these and its all ways good to talk about epilepsy, I have temperol lobe epilepsy and have done since i was around 5 years old, Ive been on many AED's including Tegratol (carbamazepine) Epilim (Sodium Valprate) and soon to be on Episenta, My sole perpous on this forum is to help others and talk to other people like myself and hopfully make a bit of a diffrence , Benjamin ... Introduce Yourself Thu, 25 Feb 2010 19:29:11 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hey-everyone-t162.htm#484 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hey-everyone-t162.htm http://www.theepilepsysupportgroup.com/sports-with-epilepsy-f28/cage-fighting-t109.htm bigbull i do cage fighting with my epilepsy and it does not effect me in any way at all and when people put us down for doin stuff like that i just ingnore them and get on with it. hopfully i will be doin my first fight very soon and lets see what goes on there Sports with Epilepsy Sun, 18 Oct 2009 19:09:59 GMT http://www.theepilepsysupportgroup.com/sports-with-epilepsy-f28/cage-fighting-t109.htm#205 http://www.theepilepsysupportgroup.com/sports-with-epilepsy-f28/cage-fighting-t109.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-cornwall-t56.htm JulieC Hi I'm Julie, I have had Epilepsy for 24 years since I was 16.I also have N.E.A.D. I live in Cornwall with my husband Jon, kids Kim age 18, Zack age 15 & Jake 12. My eldest daughter Hazel passed away 5th November 2007 from S.U.D.E.P. She was 17 years old. Take care luv Juliexx Introduce Yourself Thu, 01 Oct 2009 20:26:36 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-cornwall-t56.htm#83 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-cornwall-t56.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-alberta-canada-t143.htm Jacksmomma Hi, My son Jack was diagnosed with epilepsy at 1 month old. He has full tonic clonic seizures as well as some small absence seizures. He is currently on a Ketogenic diet, Sabril, Topamax, Keppra and Frissium (Clozapam). He is still struggling with many seizure a day (15-60). He is still undiagnosed with any disease or symptom...which frusterates us greatly. We spend alot of time researching and asking questions in our search for answers. We are currently home from a 2 month stint in the pediatric ... Introduce Yourself Wed, 03 Feb 2010 19:17:24 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-alberta-canada-t143.htm#453 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-alberta-canada-t143.htm http://www.theepilepsysupportgroup.com/creative-juice-machine-f21/stutter-t141.htm amandamarielynn Okies, so I love to write poetry. This is kind of epilepsy related, but kind of not too. It's just about how sometimes my brain goes off its own way, lol. It’s in Every Single Sentence It’s in Every Single Penance Making It so Hard to Swallow Making It so Hard to Follow I feel Oh so Very Shallow I feel Oh so Very Hollow I can’t Fix this Mental Clutter I can’t Fix this Mental Stutter Two by Two by Two they Found me Two by Two by Two they Bound ... Creative Juice Machine Thu, 28 Jan 2010 08:03:09 GMT http://www.theepilepsysupportgroup.com/creative-juice-machine-f21/stutter-t141.htm#441 http://www.theepilepsysupportgroup.com/creative-juice-machine-f21/stutter-t141.htm http://www.theepilepsysupportgroup.com/creative-juice-machine-f21/stare-t48.htm TJW Little signs were always there Though no one noticed and no one stared If they had they might have found Something was wrong, and all was not sound Comments were always "She's a dreamer" "Lost in a world you cannot reach her" Only at 28 a label was attached One that looking back always matched By the time it was recognised it had progressed Life threatening but took 10 months to assess Daily seizures, dozens at a time At first they said it was all in ... Creative Juice Machine Thu, 01 Oct 2009 08:38:27 GMT http://www.theepilepsysupportgroup.com/creative-juice-machine-f21/stare-t48.htm#52 http://www.theepilepsysupportgroup.com/creative-juice-machine-f21/stare-t48.htm http://www.theepilepsysupportgroup.com/fundraising-events-and-how-you-can-help-f36/raising-money-for-epilepsy-t160.htm Kilimanjaro Climb My name is Kerry and my father suffers from Epilepsy which is quite severe and as such has not worked for a number of years. In November this year I am climbing Kilimanjaro for the National Society of Epilepsy who do some great work in support and medical research. If you can donate anything to this cause I would be very grateful or if you can pass on my message. The target is £4000 so need all the support I can get. http://www.justgiving.com/Kerry-Adams Fundraising Events and How You Can Help Mon, 22 Feb 2010 21:20:44 GMT http://www.theepilepsysupportgroup.com/fundraising-events-and-how-you-can-help-f36/raising-money-for-epilepsy-t160.htm#480 http://www.theepilepsysupportgroup.com/fundraising-events-and-how-you-can-help-f36/raising-money-for-epilepsy-t160.htm http://www.theepilepsysupportgroup.com/epilepsy-syndromes-f3/febrile-seizures-t149.htm TJW Children aged 3 months to 5 years may have tonic-clonic seizures when they have a high fever. These are called febrile seizures (usually pronounced FEB-rile) and occur in 2% to 5% of all children. There is a slight tendency for them to run in families. If a child's parents, brothers or sisters, or other close relatives have had febrile seizures, the child is a bit more likely to have them. Sometimes the seizure comes "out of the blue." A fever may begin silently in a previously ... Epilepsy Syndromes Sun, 21 Feb 2010 13:30:41 GMT http://www.theepilepsysupportgroup.com/epilepsy-syndromes-f3/febrile-seizures-t149.htm#469 http://www.theepilepsysupportgroup.com/epilepsy-syndromes-f3/febrile-seizures-t149.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-ontario-t144.htm shanemps Hi all, I joined this support group to network with others and to learn more about Epilepsy. My 10 year old niece was recently diagnosed with Epilepsy. She seemingly 'woke up with it' one day. Literally she had her first seizure 10 minutes after she woke up. That was October and since then she has been diagnosed with having petit mal seizures but she also has tonic clonics. I would really like to know what I can do to support my sister, my niece and my nephew (who is having a very hard time ... Introduce Yourself Fri, 05 Feb 2010 22:40:36 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-ontario-t144.htm#458 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-ontario-t144.htm http://www.theepilepsysupportgroup.com/your-experiences-f9/going-off-topamax-t67.htm iowyth I have been on tegretol for many years, Topamax for about 10. For various reasons, my doctor has asked me to cut back Topamax with the possibility of going on to Lamictal. Up to 2 months ago I was taking 300 mg Topomax. Had no seizures and only occasional auras. Also am part way through Menopause, don't know if thats relevant. I have been cutting down Topamax by 25 mgs per week and showing some success. Have had a couple of seizure...but only when pills missed. That is: when pills ... Your Experiences Tue, 06 Oct 2009 11:09:37 GMT http://www.theepilepsysupportgroup.com/your-experiences-f9/going-off-topamax-t67.htm#118 http://www.theepilepsysupportgroup.com/your-experiences-f9/going-off-topamax-t67.htm http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/doctors-t134.htm Dori34 Recently one of my son's doctors gave him a combo of drugs that chould have killed him. He has mini and grand mal seizures, klonic jerks, chiari malformation, autism, speech and development delays. He is on keppra and topamax. He has gone through a crainatomy and decompression surgery. He is in a special ed preschool. I have had the worst time w/ his doctors. I am confused and frusterated, don't know where to go from here. He gets s.s.i since he has been listed disabled. Parent Discussion Lounge Wed, 06 Jan 2010 01:36:10 GMT http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/doctors-t134.htm#394 http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/doctors-t134.htm http://www.theepilepsysupportgroup.com/fun-room-f17/word-association-game-t106.htm TJW
Here's your first word:

BEACH]]> Fun Room Sat, 17 Oct 2009 18:02:34 GMT http://www.theepilepsysupportgroup.com/fun-room-f17/word-association-game-t106.htm#182 http://www.theepilepsysupportgroup.com/fun-room-f17/word-association-game-t106.htm http://www.theepilepsysupportgroup.com/sports-with-epilepsy-f28/swimming-t89.htm TJW Swimming is an excellent way to keep in shape, yet many people are frightened in case they or their children have a seizure in the water. This information aims to show that, with a few sensible precautions, people with epilepsy can enjoy all the benefits of swimming quite safely. Swimming is often a very sociable activity. Children, for example, may feel left out if they are barred from swimming just because of epilepsy, while all their classmates are playing or learning to swim ... Sports with Epilepsy Tue, 13 Oct 2009 07:40:49 GMT http://www.theepilepsysupportgroup.com/sports-with-epilepsy-f28/swimming-t89.htm#157 http://www.theepilepsysupportgroup.com/sports-with-epilepsy-f28/swimming-t89.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-manchster-england-t125.htm curtisdon1 i have recently been diagnosed with temporal lobe epilepsy after about 4 years of strange episodes and to be hoest im relieved the docs have finally foun out what was wrong with me, ive never had a full blown seizure but these strange uncontrolable feelings i have which can happen daily where really getting me down when i didnt know what was wrog with me, sometimes i felt so weird and out of place i wanted to just die so they would stop, ive been on medication now for about a month ... Introduce Yourself Thu, 03 Dec 2009 15:19:48 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-manchster-england-t125.htm#311 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-manchster-england-t125.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/sudep-t138.htm sharie1218 My name is Sharon and I am from California. I was wondering if there are any other families who have been affected by SUDEP out there. Introduce Yourself Tue, 19 Jan 2010 03:12:41 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/sudep-t138.htm#418 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/sudep-t138.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/new-here-t139.htm sexylatinawi2 I was just diagnosed with partial epilepsy. I am so happy and frustrated at the same time. I am happy that I finally know what I have. I am frustrated because it cant be cured. Anyways just wanted to say hi. Introduce Yourself Tue, 19 Jan 2010 23:34:35 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/new-here-t139.htm#419 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/new-here-t139.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-southern-ontario-t142.htm Jeff's Wife Hi everyone, I have been married to my husband for over 3 years and together for 6 and we have a 4 month old baby boy. Jeff has loweral temporal and generalized seizures and has had them for 25 years now. He has been on many different medications and is down to 3 now @ 10 pills a day. He has seizures every 2 weeks or so, 1-2 days out of that week. Having a baby is new territory and is very difficult, as he does not have "aura's" and therefore we are afraid of him holding the baby. ... Introduce Yourself Fri, 29 Jan 2010 03:14:50 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-southern-ontario-t142.htm#443 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-southern-ontario-t142.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-arizona-t140.htm amandamarielynn Hello, everyone. My name is Amanda, but a lot of people call me Ama, Twitchy, Twitchles, etc. I'm looking forward to getting to know you lovely folksies in here. :-) Introduce Yourself Thu, 28 Jan 2010 07:18:03 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-arizona-t140.htm#438 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-arizona-t140.htm http://www.theepilepsysupportgroup.com/creative-juice-machine-f21/tattoo-to-represent-my-fight-t103.htm bizco17 I'm considering getting a tattoo. I want to get something to show my support, or symbolize my fight with epilepsy. I don't want any words, just images or symbols or something. Does anyone already have one, or have any ideas for one.
Thanks everyone,
And thanks for the support. Keep fighting

Pics would be great!!]]> Creative Juice Machine Thu, 15 Oct 2009 14:57:45 GMT http://www.theepilepsysupportgroup.com/creative-juice-machine-f21/tattoo-to-represent-my-fight-t103.htm#176 http://www.theepilepsysupportgroup.com/creative-juice-machine-f21/tattoo-to-represent-my-fight-t103.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-all-from-halifax-t25.htm bigbull
i hope to see you all round the forums having fun and getting info

thanks

nick]]> Introduce Yourself Wed, 30 Sep 2009 19:37:40 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-all-from-halifax-t25.htm#25 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-all-from-halifax-t25.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-texas-t137.htm ricky2823 I have been liveing with epilepsy for over 30 years,and counting just looking for some pepole with jme like me! or helping someone that is new too epilepsy.i have been on dilantin,keppra,topamax,lamictal,nerotin.Iam currently taking lamictal and nerotin so for i have not had a tonic clonic sezure in 4 months it looks like the combo of lamictal and nerotin is working for me,does anyone else out there have jme? Introduce Yourself Tue, 19 Jan 2010 01:43:39 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-texas-t137.htm#417 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-from-texas-t137.htm http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/petit-mal-siezures-t131.htm barbara25 hi my 10 year old daughter has petit mal siezures or absent seizures are there any groups for moms like me to get info. or vent to. She feels so alone since she does not know anyone with this and often gets teased for what kids think are daydreams.thanks Parent Discussion Lounge Tue, 29 Dec 2009 20:31:27 GMT http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/petit-mal-siezures-t131.htm#362 http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/petit-mal-siezures-t131.htm http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/our-story-so-far-t126.htm sophie Hi I've got 2 gorgeous girls, Anais 3 and Eloise 1 and there's my book when Anais was about 1 years old i've notice that from time to time during dinner that she will have a little head jerk lasting only 2 sec and i was the only one noticing neither my partner or the nursery ever seen her doing it ( very frustating) then in sept 2008 Anais got a cold like any other cold she had previoulsy but for some reason the head jerk happen a lot more at this point everybody could see it then ... Parent Discussion Lounge Fri, 04 Dec 2009 20:49:36 GMT http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/our-story-so-far-t126.htm#331 http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/our-story-so-far-t126.htm http://www.theepilepsysupportgroup.com/your-experiences-f9/any-complimentary-or-alternative-therapies-t136.htm shalini I am a researcher interested to study complimentary and alternative approaches to treating epilepsy. Can you let me know of things that DID or DIDNT work for you? This can include anything, from different diets or exercise plans or botanicals or other forms of medicine. This would be very interesting and important for my research. Thanks so much for your help!
Shalini]]> Your Experiences Wed, 13 Jan 2010 18:21:08 GMT http://www.theepilepsysupportgroup.com/your-experiences-f9/any-complimentary-or-alternative-therapies-t136.htm#407 http://www.theepilepsysupportgroup.com/your-experiences-f9/any-complimentary-or-alternative-therapies-t136.htm http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/the-rest-of-our-story-t135.htm Dori34 I am a single mom w/ out help. I can't work because of all the health issues, we live in doctors office's. I get wic, medicaid and f. stamps in addition to my son's s.s.i . I had grand mal seizures as a child. I am basically looking for advice etc. My son was recently diagnosed w/ sleep apneas, sinus arythmia and restless leg. He got his cpap machine last wk. It's a bit much. Thank you. I do what i know and can but it gets overwhelming at times. Parent Discussion Lounge Wed, 06 Jan 2010 01:46:07 GMT http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/the-rest-of-our-story-t135.htm#395 http://www.theepilepsysupportgroup.com/parent-discussion-lounge-f32/the-rest-of-our-story-t135.htm http://www.theepilepsysupportgroup.com/general-chat-f31/count-down-for-tania-t129.htm sophie
Is that right Tania

Sophie]]> General Chat Wed, 23 Dec 2009 09:29:41 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/count-down-for-tania-t129.htm#358 http://www.theepilepsysupportgroup.com/general-chat-f31/count-down-for-tania-t129.htm http://www.theepilepsysupportgroup.com/general-chat-f31/xmas-and-new-year-t130.htm sophie
Sophie xxx]]> General Chat Sun, 27 Dec 2009 22:05:15 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/xmas-and-new-year-t130.htm#360 http://www.theepilepsysupportgroup.com/general-chat-f31/xmas-and-new-year-t130.htm http://www.theepilepsysupportgroup.com/general-chat-f31/eeg-scan-t132.htm Trouble I hope you had a lovely Christmas & are enjoying the New Year. I've got a sleep deprivation EEG scan tomorrow, it's totally freaking me out. I hated the last EEG scan that I had last year, so the thought of having another scan & this time to stay awake for the whole night beforehand, I'm not exactly confident that it will go well.

Take Care All x x]]> General Chat Mon, 04 Jan 2010 20:03:24 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/eeg-scan-t132.htm#369 http://www.theepilepsysupportgroup.com/general-chat-f31/eeg-scan-t132.htm http://www.theepilepsysupportgroup.com/general-chat-f31/sorry-to-have-been-away-t133.htm JulieC Hi sorry I haven't been around much, hope you all had a good Christmas & Happy New Year. Plus Congratulations to Tania & Graeme on the birth of Ruby, take care luv Juliexx General Chat Mon, 04 Jan 2010 21:24:51 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/sorry-to-have-been-away-t133.htm#376 http://www.theepilepsysupportgroup.com/general-chat-f31/sorry-to-have-been-away-t133.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-canada-too-t127.htm cassidy My name is Cassidy Megan. Thank you for letting me join your site. My mom is a member too. I am the founder of Purple Day for Epilepsy. I would love to hear your ideas for Purple Day 2010.
Thank You
Bye from
Cassidy]]> Introduce Yourself Mon, 07 Dec 2009 23:52:10 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-canada-too-t127.htm#337 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-canada-too-t127.htm http://www.theepilepsysupportgroup.com/general-chat-f31/hi-everyone-t128.htm sophie Hi just wanted to moan Me and my partner are so tired lack of sleep and doctors hospital etc and all of that has nothing to do with Anais's E but my poor baby has had a chest infection for over a month now. so we went for antibiotic X 3 also inhaler X2 different one to give + codeine + for a few days nurofen + E tablets at night so just drugs just spend all day in hospital yesterday for the third time oxygen and chest x-tray and now steroids instead of antibiotics. she doesn't want ... General Chat Wed, 16 Dec 2009 10:39:44 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/hi-everyone-t128.htm#349 http://www.theepilepsysupportgroup.com/general-chat-f31/hi-everyone-t128.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-t120.htm cazzy79 Heya, I am new. Had my first fit 8th Dec last year. Am 30. I just need to be able to talk to people about all the 'funny stuff' that's been going on. My fits seem to be controlled now since my meds were put up to 400mg. Am still suffering from abcenses, jerks and man, my memory sucks and that's getting worse. I get words all mixed up and know the word I want to say but can't find it. Is there anyone else this has happened to? Hope you're all ok. Thanks. Introduce Yourself Wed, 11 Nov 2009 08:50:47 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-t120.htm#273 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hello-t120.htm http://www.theepilepsysupportgroup.com/newsletters-archive-f35/nov-2009-t124.htm TJW Congratulations JulieC for winning our very first Member of the Month Award. This month's prize is an official TESG leather watch: Thank you Julie for being a valued member of our group. And good luck everyone for the December Award which is an official TESG Wall Clock: If you have been on the site recently you will have noticed the latest research news involving a gene which may be responsible for SUDEP. We welcome this as a step forward to one day finding ... Newsletters Archive Tue, 01 Dec 2009 07:47:34 GMT http://www.theepilepsysupportgroup.com/newsletters-archive-f35/nov-2009-t124.htm#308 http://www.theepilepsysupportgroup.com/newsletters-archive-f35/nov-2009-t124.htm http://www.theepilepsysupportgroup.com/general-chat-f31/november-2009-member-of-the-month-award-t123.htm TJW Congratulations JulieC for winning our very first Member of the Month Award. This month's prize is an official TESG watch: Thank you Julie for being a valued member of our group. Good luck everyone for the December Award which is an official TESG Wall Clock: Remember the following rules: The Member of the Month Award will be awarded to: A member who will have shown a high level of support for others on the forum, they will have been friendly and approachable. Their ... General Chat Mon, 30 Nov 2009 20:10:17 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/november-2009-member-of-the-month-award-t123.htm#306 http://www.theepilepsysupportgroup.com/general-chat-f31/november-2009-member-of-the-month-award-t123.htm http://www.theepilepsysupportgroup.com/general-chat-f31/woooohoooo-t65.htm bigbull at last we have moved it all went well took ages to up pack all the boxes but we are in General Chat Mon, 05 Oct 2009 19:54:59 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/woooohoooo-t65.htm#105 http://www.theepilepsysupportgroup.com/general-chat-f31/woooohoooo-t65.htm http://www.theepilepsysupportgroup.com/epilepsy-research-f10/is-a-gene-responsible-for-sudep-t122.htm TJW The term Sudden Unexpected (Unexplained) Death in Epilepsy (SUDEP) refers to the unexpected death of a person with epilepsy, who was otherwise healthy, and for whom no other cause of death can be found. Between 500 and 1,000 people with epilepsy die of SUDEP in the UK each year. It is thought that these deaths are in most cases related to a severe convulsive seizure affecting vital functions such as breathing or heart rhythm. Despite ongoing research, risk factors for SUDEP are only partly understood. ... Epilepsy Research Tue, 24 Nov 2009 12:30:54 GMT http://www.theepilepsysupportgroup.com/epilepsy-research-f10/is-a-gene-responsible-for-sudep-t122.htm#304 http://www.theepilepsysupportgroup.com/epilepsy-research-f10/is-a-gene-responsible-for-sudep-t122.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-canada-t121.htm angpd1 I am new here, my name is Angela and my daughter is Cassidy Megan.
Cassidy is the founder of Purple Day. We just seen your Purple Day pic and wanted to Thank everyone for all the support. Plans are under way for Purple Day 2010 , check out the Purple Day (www.purpleday.org) website to learn about the plans and it would be great if you could let us know your ideas and plans to include as well.

Thank You again
Cheers
Angela]]> Introduce Yourself Mon, 16 Nov 2009 20:24:48 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-canada-t121.htm#291 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-canada-t121.htm http://www.theepilepsysupportgroup.com/rememberance-garden-f14/in-memory-of-hazel-t57.htm JulieC My daughter Hazel passed away from S.U.D.E.P. 5th of November 2007 she was 17 years old. Hazel was due to turn 18 on Christmas day. I tell her story in That's Life magazine which will be out end of October to raise awareness of the condition. Take care luv Juliexx Rememberance Garden Thu, 01 Oct 2009 20:34:58 GMT http://www.theepilepsysupportgroup.com/rememberance-garden-f14/in-memory-of-hazel-t57.htm#86 http://www.theepilepsysupportgroup.com/rememberance-garden-f14/in-memory-of-hazel-t57.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-john-from-newport-swales-t119.htm jonny42 My name is John. Last September 2008 i lost my stepson Ryan Jones , aged 11 ,to Sudep, even thou the consultants said 3 weeks prior that there was no need for concern. Introduce Yourself Fri, 06 Nov 2009 01:16:36 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-john-from-newport-swales-t119.htm#265 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-john-from-newport-swales-t119.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-donnetta-t116.htm donnettacb98 I don't have epilepsy, but my husband does. He's had it for about 25 years. Someone I used to work with joined this group on facebook so I thought I'd check it out. So far his seizures are kept under control with Trileptal and Lamictal. The biggest struggle is getting the insurance to cover both meds in name brand. His doc is very against him getting the generic and Blue Cross Blue Shield of Texas refused to pay for it. So we had to go somewhere else to get it cheaper. We just switched to Aetna ... Introduce Yourself Fri, 30 Oct 2009 01:16:33 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-donnetta-t116.htm#250 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-donnetta-t116.htm http://www.theepilepsysupportgroup.com/general-chat-f31/liverpool-for-the-win-t115.htm bigbull hahahaha again liverpool wins man ure 2 - 0 today am really happy about this i think liverpool will win the league this year General Chat Mon, 26 Oct 2009 00:04:46 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/liverpool-for-the-win-t115.htm#247 http://www.theepilepsysupportgroup.com/general-chat-f31/liverpool-for-the-win-t115.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-reigate-t113.htm Krenzia Hello My daughter, just 18, was diagnosed with Epilepsy in July - the exact kind is not known to us at the moment. She had lots of fits in July and was in hospital for several days. On Sunday, she had her second episode in the street outside our house which left her with a dislocated jaw and loss of teeth. I find it all traumatic and lonely. I found this forum and would like to have some support - virtually and meeting up for coffee if that is possible. She is on Lamotrigine 100mg a ... Introduce Yourself Fri, 23 Oct 2009 13:59:01 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-reigate-t113.htm#225 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/hi-from-reigate-t113.htm http://www.theepilepsysupportgroup.com/general-chat-f31/important-someone-knows-what-happened-please-spread-this-link-t118.htm TJW This is classed as a viral video link and has been made to appeal to loved ones, friends and colleagues etc. of anyone who was involved in the kidnapping of Madeleine McCann. Please watch it, copy the link and post wherever you can. You never know who may see it and respond... http://news.uk.msn.com/uk/article.aspx?cp-documentid=150588816 General Chat Tue, 03 Nov 2009 21:05:41 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/important-someone-knows-what-happened-please-spread-this-link-t118.htm#260 http://www.theepilepsysupportgroup.com/general-chat-f31/important-someone-knows-what-happened-please-spread-this-link-t118.htm http://www.theepilepsysupportgroup.com/epilepsy-research-f10/newly-discovered-cause-of-seizures-t117.htm TJW Researchers in Germany have found a potential new cause of seizure activity in the brain, involving a protein known as PRG-1 (named after the gene that encodes it, Plasticity Related Gene-1). The team, based at Charité Universitätsmedizin Berlin, was in fact the first to discover PRG-1 in an earlier study. They were especially intrigued by this protein, because it was only found in the brain, and more specifically in the membranes of neurons in the hippocampus (an important memory centre). ... Epilepsy Research Mon, 02 Nov 2009 01:11:01 GMT http://www.theepilepsysupportgroup.com/epilepsy-research-f10/newly-discovered-cause-of-seizures-t117.htm#256 http://www.theepilepsysupportgroup.com/epilepsy-research-f10/newly-discovered-cause-of-seizures-t117.htm http://www.theepilepsysupportgroup.com/general-chat-f31/seizure-alert-mat-for-the-bed-t114.htm Carol Can anyone recommend a good seizure alert mat for the bed General Chat Sat, 24 Oct 2009 12:50:30 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/seizure-alert-mat-for-the-bed-t114.htm#239 http://www.theepilepsysupportgroup.com/general-chat-f31/seizure-alert-mat-for-the-bed-t114.htm http://www.theepilepsysupportgroup.com/general-chat-f31/new-twitter-page-t108.htm TJW https://twitter.com/OfficialTESG]]> General Chat Sat, 17 Oct 2009 20:07:39 GMT http://www.theepilepsysupportgroup.com/general-chat-f31/new-twitter-page-t108.htm#201 http://www.theepilepsysupportgroup.com/general-chat-f31/new-twitter-page-t108.htm http://www.theepilepsysupportgroup.com/introduce-yourself-f1/bonjour-from-jersey-t47.htm sophie I'm Sophie and the mum of Anais 3 and Eloise 11 months.
Anais has been diagnosed with unusal type of Epilepsy in Sept 2008, she 's now on 20 mg of clobazam and 200 mg of Lamotrigine.

Sophie]]> Introduce Yourself Thu, 01 Oct 2009 06:45:20 GMT http://www.theepilepsysupportgroup.com/introduce-yourself-f1/bonjour-from-jersey-t47.htm#49 http://www.theepilepsysupportgroup.com/introduce-yourself-f1/bonjour-from-jersey-t47.htm